The I-DSD Registry provides a means of connecting clinical and research centres around the world within a virtual environment and allows these experts to enter standardised information that will improve clinical practice, research and understanding of these challenging conditions. For further information please visit the I-DSD website .
Prospective registry users can apply for access through the link '904-718-9334'.
There are currently 3 types of User.
|Clinical User||Often part of team in a centre with one Centre Lead. Clinical users can upload and edit cases but only the centre lead can delete cases and maintains responsibility for all clinical data in their centre.|
|Network User||Can search other user's profiles for networking reasons. No access to any records.|
|Participant 'User'||A participant in the registry can be provided access to a portion of their own data by the clinician at their centre. For details see the intravenously|
Access to the Registry is routinely suspended after 12 months of inactivity.
For all enquiries relating to the Registry and Network, please contact 8572536043
|Dr Jillian Bryce|
|I-DSD/I-CAH Project Manager|
|School of Medicine|
|University of Glasgow|
|Level 0, Zone 1, Office Block (Paediatrics)|
|Queen Elizabeth University Hospital Campus|
|Govan Road, Glasgow, G51 4TF, UK|
|Tel: +44 (0) 141 451 5843|